• World Oxygen Day – O2

    October 2, 2024
    Uncategorized
    World Oxygen Day – O2

    I suppose that since I was born as an able-bodied person, it’s only natural that when I lose one of my basic bodily functions, I will suddenly appreciate the systems my human body performs on a daily basis. Nothing could be more fundamental to every moment of our lives as a living creature, then breathing.

    From the first gasp you took as your mother brought you into the world, breath became the inspiration for your very existence.  For me to be unable to do this, the most basic of things on my own is almost unfathomable to me. To do something as simple as walk across the room to turn on the light, my body requires supplemental oxygen. The strength of my arms and legs has significantly decreased, because they are not fortified by oxygen at the rate they would prefer. At only 42 years old, I did not think my body would fail me so completely. Life lesson, always get the extended warranty!

    Today: October 2nd, or o2! is known as world oxygen day. The goal of which is to highlight those of us who are struggling with basic breathing. Certain lung advocacy groups also use today to unite behind calling our elected officials and encouraging them to pass bills that require health insurance companies to cover supplemental oxygen- specifically portable oxygen and liquid oxygen because both allow the wearer to leave their home and perform basic daily activities.

    I know it may not be as prevalent as certain other causes that affect a greater number of people, but those of us with lung disease are still fighting our own daily battles. Please take a moment and educate yourself about accessible spaces and opportunities, situations where those with physical limitations may struggle, and your own relation to the handicapped world: with parking, ramps, doors, etc. And if nothing else, I hope that you take a moment today where you reflect and take a delicious, deep breath of oxygen, and appreciate the inspiration it provides your very soul. Know that I am jealous because I long to feel my lungs expand with the pressure of blowing up a balloon or blowing out a birthday candle. But the life that I am living with my external lungs and my portable oxygen, I am appreciating with every fiber of my existence. And I am blessed that I have the opportunity to experience our beautiful world.

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  • Some of my Favorite Things

    September 27, 2024
    Uncategorized
    Some of my Favorite Things

    Since every trip out of the house is now a logistical adventure, I have tried to make each experience as fun and low stress as possible. As such, I try to think ahead, identify things I have needed in the past and squirrel them away so that I’m prepared and I try to look capable in my movements. I know it may seem like a silly thing, but I don’t want people to look at me and pity me because of all of the equipment and necessary steps for me to go about simple daily tasks.


    For those of you who know me, I have always been one for a cheap thrill! I am a terrible gambler because that kind of risk does not interest me, but I love me a trip to the arcade. I get the joy of playing games and the bonus of winning tickets, so that I can redeem them for things that I might never have splurged on myself. Thanks to the Boardwalk Arcade in my hometown of Sea Isle City, New Jersey, I now have a collection of designer bags and accessories. Things that I would never go into a store and buy, but I feel so very special and extravagant when I am able to redeem my points for such things!

    The video above is a peek into my new Kate Spade mini backpack which has taken the place of a purse since I cannot wear anything across my body as it gets tangled with my oxygen cord. But at present I also wear my oxygen in a sling bag because that’s how the canisters are designed, so a backpack is a great help!

    And though I now recognize that my lung function has been diminishing over the last 2 years, there is one thing that remains constant: the effectiveness of Vicks VapoCool cough drops for getting my lung inflammation to subside, if ever briefly. They come in three flavors and a sugar-free, I have my own preferences but I do like to mix it up because somehow they feel more effective that way. Considering we are coming up on cold and flu season, I felt that my public service announcement was warranted. Take it from someone who coughs a lot that these are a great development in modern medicine!

    Exciting developments for this weekend as I believe my Independence is imminent! Keep your eye out for that excited blog when the time comes. Have a great weekend everybody!

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  • Old Fashioned Family Reunion

    September 24, 2024
    Uncategorized

    Some things are timeless… And some places are timeless. I am lucky enough to hail from one of those places, Lancaster County, Pennsylvania.

    My mother and I recently took a trip back, it was a 3-hour drive on a Sunday afternoon when the Eagles play at 1:30 at home, but it was wonderful to see so many familiar faces. Amazing how everyone looked both the same and different simultaneously. I definitely stuck with the older crowd, there was “walker” parking and a collection of canes! I was even gifted some snazzy new canes so that I can show off my style while also showing off my independent walking dexterity.

    I say the walking part tongue-in-cheek because the behind the scenes necessary to orchestrate the oxygen delivery and tanks just to make this drive is mind-blowing to me. It was honestly such a short visit, about 2 and 1/2 hours of actual quality time with family, but when you add in the drive and the planning, the actual outing took over 10 hours of energy. 

    I am very much looking forward to the next stage in my recovery where I am able to use a portable oxygen concentrator and remove the toxic oxygen delivery company from my life. The whole process has honestly made me want to start either an advocacy group or a non-profit to help other people who are going through this. I have joined several groups online, and it’s amazing how many people are suffering in silence at home and their mental health is deteriorating because they cannot leave. When you cannot breathe, you cannot leave. It is very hard to understand until you are living it.

    If I had my way, I would gift everyone with breathing difficulties these exterior lungs to allow them the freedom to continue to explore their world. But for now I digress and all I say is this: as you age, ask those important people in your life who were a formidable presence as you were growing: ASK! Relive your memories together and now ask them how they remember it. I find it fascinating when you can take a core memory and further understand it through the lens of the person you have become, and with the additional information of the other people who were present during that pivotal time in your life.

    But just as much as I want you to indulge in life’s sweet memories, I hope you’ll also indulge in the dessert table. Because some things in life can be so small but bring such monumental moments of Joy. My joy just happens to be dipped in Nutella.

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  • From Fast Forward to Mindful Living

    September 21, 2024
    Uncategorized
    From Fast Forward to Mindful Living

    I am a lucky woman. I should have died.

    I am a lucky woman. I am going to die.

    How many people die tragically and suddenly, never knowing that this seemingly mundane day will be their last? Unable to glean true pleasure from that last cup of coffee or hearing their favorite song on the radio during the ride to work?  I am fortunate enough to be young(ish) and to know that I likely will not get old – so it’s time to start LIVING every day to its utmost.

    Utmost may vary from day to day.  Sometimes the utmost is a day of peaceful tranquility, stillness and reflection.  Sometimes it may be seeing one of the world’s most breathtaking sights.  But one thing is certain- my life in FAST FORWARD has officially stopped.  My life is now in slow motion.  Every breath.  Every ray of sunshine.  Every raindrop with the sun gleaming through that makes you squint.  Every crackling outdoor fire.  Every bird swooping by.  Every crashing wave.  THAT is the world now.  May that be your world always. 

    I am monumentally guilty of taking things for granted.  It’s human nature I suppose.  My health.  My youth.  ALWAYS my knees.  But no more.  And you know what?
    It’s immensely freeing.

    It isn’t lost on me that not only must I slow down, but it is also a challenge to speak.  So now I am forced to listen to everything around me, and my life is so much the richer because of it!  From the sounds of nature, to the voices and stories of my beloved friends – I finder greater joy in not being able to speak as much.

    I wish the same for you.  A presence of mind and an enrichment of spirit that forces you to simply BE.  And in being, may you also find a deeper joy and contentment than you ever could have imagined.

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Chronicling my adventures & misadventures as I tackle the bucket list of life…

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